Support Us · Campaigns
CASK Gene Awareness Day
CASK Gene Awareness Day is on 15th July. Throughout the first half of July we come together to celebrate our CASK warriors and remember those lost to the condition.
This special time of year is the perfect opportunity to spread awareness, support fundraising efforts, and take part in events happening across the global CASK community.
Now is a great time to start planning YOUR "One Thing" for CASK Awareness Month. Your "One Thing" can be absolutely anything — it doesn't have to involve fundraising. Simply helping others learn more about CASK-related disorders and sharing awareness can make a huge difference.
Whatever you decide to do, please stay safe, keep us updated, and share your amazing efforts to encourage and inspire others along the way. We're so excited to see what your "One Thing" will be this year.
What is the purpose of an awareness day or month?
- Unite the community through solidarity and hope
- Increase understanding among friends, families and professionals
- Highlight disabling symptoms like infantile spasms
- Communicate the need for treatments and research
Click to personalise on Twibbonize.
How will you participate?
- Share our awareness materials
- Distribute our videos and animations
- Subscribe to newsletters and social media
- Change your profile picture to the CASK Awareness Day frame which you can easily personalise
- Join Race for Research events
- Organise fundraisers like coffee mornings
- Dedicate a Dragonfly
- Buy your awareness T-shirt
Video resources
Visit our YouTube channel for informative shorts and our documentary to share with your family and friends. You can also find the videos on our social media pages @caskresearch on Instagram, Facebook and TikTok.
Merchandise
T-shirts featuring two eye-catching designs are available worldwide. "Every penny goes towards funding research to help find treatments for our CASK warriors."
Educational materials
FAST FACTS leaflets provide quick education about CASK in English, Polish and German, with customisable options for adding photos. Additional resources include organisational flyers and medical diagnostic guides for neurology teams.
