CASK Gene Awareness Day is on July 15th. During the week of the 15th we celebrate our CASK warriors and remember our CASK warrior angels.
Please watch and share our videos and posts for CASK Gene Awareness Day.
Why do we have an awareness day?
- It’s the time for the community to come together in solidarity and hope.
- It’s the opportunity to spread awareness amongst our friends and families to improve understanding of the disease and spread compassion.
- It’s an opportunity to spread awareness of the disabling symptoms like infantile spasms.
Why do we need awareness?
- We need people to realise that this disease exists and how it impacts our children and families.
- We need the world to know that we want treatments.
- We want scientists to know we’re ready and waiting to be researched.
What can you do for CASK Awareness week?
- Share your personalised FAST FACTS leaflet (scroll down) with friends, family and clinicians and teachers.
- Tell everyone about the CASK Coalition and how we’re working together to raise funds for life-changing research.
- Share our videos and animations.
- Sign up to our newsletters and social media sites.
- Change your profile picture.
- Sign up to our Race for Research
- Hold your own fundraiser like a coffee morning. You can find more fundraising ideas here.
Your Social media profile pictures
Click here to access this frame to insert your child’s photo on Canva.
Materials for raising awareness
Our FAST FACTS leaflets are the ideal way to educate friends, family and professionals in a quick and easy way. You can even personalise them by adding your child’s photo to it. Click here to access the Canva editable version or you can download the pdf.
If you are holding a fundraiser our CASK Research UK flyers explain who we are and what we do.
