Meet our trustees
We currently have eight trustees. Their aim is to ensure CASK Research UK follows its constitution. Our trustees play a very important role in making sure that the charity is run in the interests of the people it is here to support. They strategically oversee the management and administration of the organisation.
Four of the trustees are mothers to children with a CASK disorder whilst the others have a close connection with a CASK family. Since CASK disorders span a broad range of phenotypes and medical complexities it is important that the charity has representatives from all parts of the spectrum.
Laura Hattersley is founder, Chair and Director of CASK Research UK. Her daughter Sarah has MICPCH and has complex medical needs. She is tube fed, has epilepsy and progressive scoliosis and is unable to sit unaided. On her good days Sarah is a professional heart-melter and warrior.
Emily Richards is Vice-chair of trustees. Her daughter Ailla has MICPCH, is able to walk and can do basic communication via body gestures. Ailla is an adorable but exhausting and strong-willed whirl-wind both during the day and night.
Sarah Sanders has a daughter, Jess, who has XL-ID with or without nystagmus. Jess, who is now an adult, lives her best life with the help of her ever-supportive mum Sarah.
Liz Day has a young son with MICPCH. Liz was a deputy head before having to leave work to care for Henry. Henry is very medically complex who has spent a large proportion of his life in hospital. Liz is an amazing advocator for CASK and an inspiration to other families in similar situations. You can follow her popular blogs here.
Nicole is a policy adviser for an independent professional body and has over ten years experience with policy and professional regulation.
Andrea has spent her career in mainstream secondary education with experience in a wide variety of academic, pastoral and management roles.
Rachel Manktelow was a Trust and Grants officer and has a background in market research. She currently runs a pre-loved clothing company.
Become part of our team
We are always looking to expand our team of helpers. Please get in touch if you would like to volunteer for CASK Research UK. Email firstname.lastname@example.org