Privacy Policy

Who we are

CASK Research Foundation is a registered charity no. 1197434 (England and Wales) and is registered at 33 Finchdean Road, Rowland’s Castle, Hampshire, PO9 6DA.

All entities are wholly owned and controlled by CASK Research Foundation.

We are registered with the Fundraising Regulator and follow their best practice code: Code of Fundraising Practice.

Our website is


When visitors leave comments on news posts on the site we may collect the comment but not the IP address or personal details. Your comments will be open to the public. You may ask for your comment to be removed by contacting


Visitors to the website can download and extract any location data from images on the website. All images of children or adults associated with CASK will have given prior permission for their image to be used by submitting a photograph permission form to us.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Who we share your data with

We will not share your data with anyone outside of the CASK Research Foundation organisation unless we expressly ask for your written permission.

How long we retain your data

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.

We use Mailchimp for our distribution lists and contact forms and an admin in CASK Research Foundation has access to these lists. Click here for Mailchimp’s privacy policy. The distribution list are stored on a secure Mailchimp server. They do not, under any circumstances, sell the distribution List.

CASK Research Foundation will remove any data we hold on you when requested within 21 days.

What rights you have over your data

If you have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service. We will not send your data to any third parties without your expressed written permission and this will only be in circumstances where data may be required by our researchers or clinicians.