On 16th July 2024 CASK families from around the globe were joined by leading experts in the medical field to answer our questions. Watch the recordings now to learn more about CASK disorders from the perspective of clinicians.
CASK Family Meet Up 2024 On Saturday, 28th September, eight families gathered at the Thomley Activity Centre for the annual CASK Family Meet-Up, an event that has become a cornerstone of connection, support, and understanding for those living with CASK…
Great South Run - Juniors! Join us for the Junior and Mini Great South Run this October! It's your chance to dress as your favourite superhero and raise money to find a treatment for CASK! The theme for the children's…
Visit our dedicated page for all your CASK Awareness material. From ideas on things to do all week to flyers to download. It's all there on our webpage.
Check out our new page listing runs, swims and rides across the country. Our easy to use list provides entry dates, event dates and links to the websites. It's never been easier to do a sponsored event for CASK! Get…
Rare Disease Day 2024 The Portsmouth iconic landmark, the Spinnaker Tower, was lit up for Rare Disease Day by CASK Research UK. Our founder Laura had a busy day, spending the afternoon at the Palace of Westminster at the Rare…
Following the incredible success of an online fundraiser by one of our community members, the CASK Coalition's first CURE CASK project is complete! Baby Tenley turned 1 this January and her parents used the occasion to create a fundraiser to…
First CASK pilot grant awarded We've just awarded a £25,000 pilot grant to Professor James Hodge at Bristol University. Since 2003, Professor Hodge has been dedicated to a CASK quest, and it's high time his dedication reaps rewards!In partnership with…
Sparkles for CASK This Christmas we invited families around the country to raise awareness of our rare disease. We currently have two trails running called 'Sparkles for Sarah' in honor of 6 year old Sarah who has MICPCH. Follow the Facebook…
At the beginning of September eight families with a child with a CASK disorder met at Camp Mohawk, near Reading. It was a hot and sunny day and the families made the most of the incredible grounds and cool indoor…
Get ready for a sparkling fundraiser this Christmas Organise your own living advent trail this Christmas.If you live in a friendly community and want to create a simple event to raise awareness of CASK whilst also bringing joy to every…
Check out our page for all the opportunities to help your child.
Highlights from last year’s fun runs around the globe
©2024 CASK Research UK
(CASK Research Foundation)
Registered charity no. 1197434 England & Wales
