Charities that can help our families

There are numerous charities in the UK that can assist families with a disabled child.

UKIST – The UK Infantile Spasms Trust provides a network of support to families with children affected by infantile spasms. The charity offers a lifeline to anxious parents via its online community and family events.

Family fund – They provide families of disabled children grants to buy specialist equipment. It is specifically for low income families.

Dreams come true – A national charity enabling children and young adults with serious or life-limiting conditions to have their dreams come true.

Make a wish foundation – Making wishes come true for children with serious illnesses. Several CASK families have visited Disney World with the foundation.

Scope – A national charity for the disabled. They provide a telephone helpline for support. They are the goto website and charity for providing help on how to ensure you get the help you are entitled to. They have useful template letters as well.

Mencap – A national charity for people with learning disabilities. They have a helpline and also list services that may be of help. Mencap also offer free seminars for families, such as how to ensure your child will be looked after financially in the future and the importance of making a will.

Disability union – “Our ambition at The Disability Union is to build a truly inclusive world. We believe that inclusion is a human right, which is why we work day in, day out to protect and enhance the lives of disabled people across the United Kingdom.”

Cerebra – They have a free toy loan library and a library for parent including lots of books about disability and complex needs

Sense – They supports families with complex needs by, for example, delivering programmes that allow people to be active through meaningful and engaging local activities. 

Meru – They provide switch adapted toys and also adapt toys to be switch adapted free of charge. They sell other toys and have a Bugzi (a children’s powered wheelchair) loan scheme.