Rare Disease Day 2024

The Portsmouth iconic landmark, the Spinnaker Tower, was lit up for Rare Disease Day by CASK Research UK. Our founder Laura had a busy day, spending the afternoon at the Palace of Westminster at the Rare Disease Day reception and then launching the online premier of the new documentary ‘Life with CASK’. She then headed down to Portsmouth with her local councillor Charlene Maines to view the Spinnaker Tower in person.