X Reactivation Study funding complete!

Following the incredible success of an online fundraiser by one of our community members, the CASK Coalition’s first CURE CASK project is complete! Baby Tenley turned 1 this January and her parents used the occasion to create a fundraiser to help raise funds towards CURE CASK. They raised an impressive $35,000, which was more thanContinue reading “X Reactivation Study funding complete!”

First pilot grant awarded

First CASK pilot grant awarded We’ve just awarded a £25,000 pilot grant to Professor James Hodge at Bristol University.  Since 2003, Professor Hodge has been dedicated to a CASK quest, and it’s high time his dedication reaps rewards!In partnership with Dr. Ben Housden from Exeter University, they’re creating something spectacular – a robust fly modelContinue reading “First pilot grant awarded”

The CASK living advent trail

Get ready for a sparkling fundraiser this Christmas Organise your own living advent trail this Christmas. If you live in a friendly community and want to create a simple event to raise awareness of CASK whilst also bringing joy to every level of ability, then look no further! A Living Advent Trail is when aContinue reading “The CASK living advent trail”

New Cambridge University Study

Are you interested in understanding the strengths and challenges of individuals with a CASK gene difference? Are you interested in exploring why your child might feel, act, learn, or communicate differently? So are researchers leading the BINGO project based at the MRC Cognition and Brain Sciences Unit, University of Cambridge. BINGO stands for Brain andContinue reading “New Cambridge University Study”