Following the incredible success of an online fundraiser by one of our community members, the CASK Coalition’s first CURE CASK project is complete! Baby Tenley turned 1 this January and her parents used the occasion to create a fundraiser to help raise funds towards CURE CASK. They raised an impressive $35,000, which was more than enough to provide the remaining funds needed. We thank Tenley’s family and supporters from the bottom of our hearts. The CASK Coalition has therefore successfully raised all the funds for the Fink Lab at UC Davis, USA, to study X reactivation of the CASK gene in stem cells. This will provide enough data to 1) see whether it is possible to activate the silenced CASK gene using gene technology and 2) enable the team to apply for larger grants to move the project forwards towards a viable therapeutic for our children. This project highlights the strength of individual CASK non-profits working together with a common aim. The CASK Coalition is truly accelerating the path to a cure. Read more about this research project here.
